We’re working towards setting up a Charity in Phoebe’s name, Phoebe’s Roundabout. We’ve just engaged a solicitor and hope to be registered and up and running and ready to fundraise in earnest latest by August 2017.

Using a solicitor helps save time and stress while I try and work full time but it comes at a cost :(. We also want to take a trip, as invited, to Paris to meet with the researchers working on research into LPIN1 as soon as we can. This will help us set clearer objectives and targets for fundraising.

To help cover these costs I ran the Manchester 10K. I’ve never run before, and went from couch to ready to run 10k since losing Phoebe last September. My husband Ralph iran with me and coached me round, but if you want to reward our efforts further then see the link to my justgiving page below it’s still live 🙂

I’ll keep this page updated with more fundraising news as I have it!

Thank You for your Support