Phoebe’s Roundabout has been registered as a charity in the UK with it’s main objectives being to raise money to fund research into the treatment of LPIN1 as well as supporting the families affected by this rare and life threatening condition which took our daughter’s life. The website isn’t finished and I’ve just sent off the forms to open the bank account but as I’ve been doing my Charity and Advent Calendar over on Instagram, I didn’t want not to feature Phoebe’s Roundabout so I’ve set up this just giving page:

I’ve been giving £2 a day to a different charity every day this December 2017. Perhaps you could spare £2 to help us get Phoebe’ Roundabout off to a good start for 2018.